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mHealth News: Grandma Wins “Apps Against Abuse” Tech Challenge

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There aren’t too many grandmothers developing mobile health apps these days, but I met a charming one (Jill Campbell) at the mHealth Summit yesterday. Jill is a 60 year-old woman from Texas who has been actively concerned for the safety of herself and her daughter over the years.

“My daughter took a self-defense class,” Jill explained, “And she was taught the ‘fight or flight’ response to escape harm. I’m 60 years old. I’m not good at fighting and not very fast at fleeing. So what’s my third option?” Jill created the WatchMe 911 app to provide the solution.

“I first started thinking about a personal alarm system before smart phones even existed. I saw that there were car alarms and house alarms, and wondered why there weren’t personal alarms. At the time I imagined that the personal alarm would go through an answering service system, but since smart phones were created, it can all be tied together in an app format.”

Jill demonstrated the WatchMe 911 app to me during our interview. It contains features such as a panic button that can be armed in advance. Two taps on the smart phone screen and a circle of friends and 9-1-1 are contacted immediately with your GPS location and an alert message. The panic button is a favorite for women who are concerned for their safety when walking late at night or in dimly lit parking lots or alleys. Read more »

The Cutest Nutrition Video Ever: Introducing The Porter Family

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As my regular readers already know, I’ve been eagerly coaching the Boys & Girls Clubs’ Triple Play Fit Family Challenge (FFC) participants on healthy eating. During a recent phone call with the families I expressed some wistfulness about not being able to *see* what they’ve been eating (the FFC blog is filled with charming action shots of the families exercising, but almost no food cameos). And this is what the Porter family just sent me. It’s a video inviting me to a dinner of grilled tilapia, brown rice, acorn squash, mushrooms and broccoli. Tell me if this isn’t the cutest nutrition video ever?

Treatment Success Depends Largely On Patient Participation

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Ten days ago a post here mentioned the 14th ICSI / IHI Colloquium. I said the Society for Participatory Medicine was well represented, including:

  • Jessie Gruman, four time cancer patient and founding co-editor of our journal, gave an important breakout session, about which I’ll be writing soon. (Jessie is founder and president of the excellent Center For Advancing Health.)

Jessie’s talk was so good it had me going nuts on Twitter – I couldn’t keep up with all the “tweet-worthy” things that came out of her mouth.

Well, I’ve just re-read her text, and it brought back why I went nuts. I was going to write about it, but I’m just going to post the full text.

For those who don’t know, last fall Jessie underwent surgery for her fourth cancer; she has some experience. Read more »

*This blog post was originally published at e-Patients.net*

Medical Fatigue: Hitting “The Wall”

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How is it that a person with an illness forgets to take their medicine, or refuses to get a treatment, or forgoes important monitoring? I’ve been thinking about that because someone close to me has hit that “medical fatigue” wall. There has been no effective treatment for their digestive system illness and they are tired of the prods, pokes, and special exams. They just want to live their life and “cope.”

One can understand – especially in a child or teenager. Imagine someone with diabetes. Diet, exercise, monitoring, medication. It can be so tiring. If only the illness – the boogieman or what some call “the beast” could just go away!

But it can’t and it doesn’t. And medical treatments may well be imperfect. They probably are. So do you give up? There is no “right answer,” only a right answer for you. Here are some examples: This week I am interviewing Kathy Sparks of suburban Seattle. Kathy is a nurse who was diagnosed with melanoma on her forearm. It was cut out. Then more was cut out. Then it came back. She had chemotherapy with lots of side effects. A remission followed, and then it came back again, this time in her breast. As time passed doctors gave her only months to live. Unwilling to try to fairly toxic chemo again, she spent time making peace with her impending demise. Read more »

*This blog post was originally published at Andrew's Blog*

Patient Stories About Hair Loss

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The New York Times has a series called “Patient Voices” which gives insights from the patients with the disease, physical and emotional changes in their lives, and accommodations made. The most recent series is on patients with alopecia (hair loss).

“The Voices of Alopecia” by Tara Parker-Pope (July 6, 2010):

This week, Patient Voices explores alopecia, an autoimmune disease that leads to a few bald patches to the loss of every hair on a person’s body.

To hear what it’s like to live with alopecia, listen to the Patient Voices audio slideshow that features adults, children and their parents who are coping with the condition.

Listen to these seven people tell what it’s like to live with alopecia:

- Matt Kelly, 43, lost his hair at age 38 over a 6 week time span.

- Jennifer DeFreece, 29, developed alopecia totalis as a child.

- Margaret Staib, 42, an artist with three daughters.

- Rafi Wasselman, 16, says his best medicine is his collection of caps.

- Maureen McGettigan, 47, began losing her hair at age 16.

- Annie Kazmi, 33, tells her daughter Noori’s story. Then Noori tells her own. Read more »

*This blog post was originally published at Suture for a Living*

Latest Interviews

The Surprising Economic Burden Of ADHD (Attention-Deficit Hyperactivity Disorder)

If you can read this you need to download a more recent browser It is estimated that as many as million U.S. adults have ADHD Attention-Deficit Hyperactivity Disorder A recent research study publication-pending suggests that the economic burden of ADHD on America could be as high as billion annually. I…

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Is The Adderall Shortage A Harbinger Of Future Drug Supply Problems?

If you can read this you need to download a more recent browser Today most- if not all- Doctor’s offices are strained by the shortage of some prescription medication or vaccine. A month ago President Obama signed his executive order directing the FDA to take steps to reduce drug shortages…

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Latest Book Reviews

Book Review: The First Step To Improve Health Care Is A Close Examination Of How It’s Delivered

My friend and former Chair of the CFAH Board of Trustees Doug Kamerow has written a book that I think you will like. Besides being a mensch and witty as heck Doug is a family doctor and a preventive medicine specialist. In his new book Dissecting American Health Care Commentaries…

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“Your Medical Mind” Explores Factors That Influence A Patient’s Medical Decisions

Recently I had a conversation with Shannon Brownlee the widely respected science journalist and acting director of the Health Policy Program at the New America Foundation about whether men should continue to have access to the PSA test for prostate cancer screening despite the overwhelming evidence that it extends few…

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Book Review: Food Truths, Food Lies

Food Truths Food Lies written by family physician Eric Marcotte M.D. may be the most refreshingly evidence-based diet book of the decade. You will not find a single mention of super-foods magical berries or supplement must-haves in the entire book. What you will find is the cold hard truth about…

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